Young Onset Dementias Working Group

In 2013, there were 42,325 people with young onset dementia (onset before the age of 65 years) in the UK; over 3,000 people in the South West.

The South West SCN co-ordinate the working group for Young Onset Dementia (including Huntingdon’s Chorea). The group help to ensure younger people diagnosed with dementia in the South West receive best practice information, support and care. The aims of the group include developing commissioning guidance on how to ensure timely and accurate diagnosis, ensuring peer support is appropriate for younger people with dementia, providing advice to employers of those with dementia, and setting up a dementia register.

In order to provide guidance to commissioners, providers, social care and voluntary sector, the South West SCN is undertaking a mapping exercise of service provision in the region for those with Young Onset Dementia. This exercise will identify what is available in the South West and help share examples of good practice.

If you are interested in joining this group, please contact Anna Bilham using the ‘Contact us’ tab, giving details of your current role and why you have a particular enthusiasm for the Group’s remit.


Name Representing
Sonya Pratt (Chair) Devon Partnership
Adam Zeman Exeter University
Andrea Blotkamp Bristol Clinical Commissioning Group
Alison Rowswell Somerset CCG
Anne Rollings North Somerset Community Partnership
Derek Dominey Alzheimers Society
Elizabeth Coulthard North Bristol Trust
Eric Holliday Swindon CCG
Roy Jones Bath University
William Knight South Devon Healthcare